Quote:
Originally Posted by terralyn
When family and friends ask, "what's wrong with you?" or say things like, "There's got to be a way to fix it." when you are talking about RSD..how do you respond? What do you say that can relate what's going on? I sometimes just wish people wouldn't ask, because even when I try to explain it as simply as possible I get looks like I haven't tried hard enough to "fix it" or that I make no sense.
It's frustrating. I don't want attention or sympathy from others. I DO need understanding when I tell someone, "no I can't physically do that right now."
How do you handle these situations?  |
Hello Terralyn...
I understand your frustration... I do believe there are times, the least we say the better..as we try to explain what RSD is and how it affects us and what we have tried to better ourselves..the more it brings on my questions and conversation about it..I'm like you.. No added attention, please.. I think best said as I suffer from an incurable neurological illness,, it has changed my life but I'm okay....
We owe it only to ourselves the contentment of our efforts and peace of mind..others will just have to understand that.. RSD is hard enuf for us to understand and live with... We don't not need added pressure from others..
Bless you..and have a wonderful, pain less.. Night,
Kathy..