I think I left the area just after the mass exodus about moderating posts. Many folks were fired up and didnt want to have to wait for someone to read, approve of, then finally post their posting. It only took a few minutes, but it felt like censorship and it upset many. It was stated very clearly to me that its not what the site wanted, but was a demand of the MS society that it be done that way. I contacted the MS society and on several levels was told NO WAY was that their rule. The individual sites that represent them can set their own rules. That was just ONE of the many layers of half truths, and untrue things I found going on there.

I adored some of the people there. it was a wrench to let go and walk out that door. I was trying to tell some that I too have MS and its hard for me to sit at my computer for 6 hours to moderate postings. If I can sit for 6 hours, why wouldnt I get a job? it was a hard thing for me in the early days, but I was so information hungry. I read everything I could get my hands on. I worked hard to educate myself about this disease. From what the experts said to what the patients with the disease said.

I have found this place to be more inclusive, and more compassionate and anyone from any forum can jump in anytime and just hug you, or wipe your tears, or calm your fears, or share their experiences, or simply say how happy they are to see you. Even posts such as "where are you?!" or "what have you wiggled in public today?" Funny things to make us laugh and draw us together. There are no lines drawn in the sand to say "you cant speak directly to another patient, you must say it thru me." (that was another site). I tried on many MS websites for size, and this one suits me just fine.

After leaving my post, I was shell shocked, over worked, over tired, overwhelmed and it was an adjustment to not sit at the computer for hours and hours and hours. I was just able to concentrate on MY needs, and being helpful and friendly without the iron glove on. I hope you find the peace, and the rest that I have found in this place. it truly has been a healing well for me to sit and think, or drink, or whine, or cry on MY schedule. its come to be a home for me. I hope it can be the same for you.