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Old 05-14-2012, 09:39 AM
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
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Quote:
Originally Posted by Susanne C. View Post
In the process of trying to become my own detective, as Mrs. D. advocates, and in addition to using my body as a chemistry set and possibly suspecting whatever virus is causing swollen glands and a fever blister as a culprit in causing the burning skin sensation which is now mercifully less acute but still with me, I thought of something else. (apologies for the run-on sentence)

I am prone to pressure palsies. I have pinched nerves at all my joints, so much do that the neurologist at Hopkins was pretty sure it was HNPP, but tests for same came back negative. My SFN is severe and long established. (skin biopsy)
Final diagnosis probable CMT type 2.

I teach high school this year. Mistake, but interesting and almost done. This means that I spend four hours straight every morning standing up and leaning my thighs against a stool. The burning started in this very spot, spread to the hips and front of my legs, and then to the shoulders and upper arms.

There are other factors which I am trying to eliminate, but my question is this- can a compression neuropathy in one spot evoke a sympathetic response in a mirror image fashion in a part of the body not subject to compression?

Any thoughts would be most welcome. Thank you.
Interesting. Heredity Neuropathy with Liability to Pressure Palsies (HNPP) is a deletion and CMT 1A is a duplication. This site can give you lots of information explaining how this is, how to test for it, etc.

http://www.hnpp.org/

It isn't current but it is well written and the person knows her stuff. She has HNPP I have seen her at one of our support group meetings.

Hope this helps. Also standing for four hours isn't helping either. Maybe you can sit at times. JMO
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Last edited by Kitt; 05-14-2012 at 11:54 AM.
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"Thanks for this!" says:
mrsD (05-14-2012), Susanne C. (05-14-2012)