Sunshine--I agree that you should find a neurologist who either specializes in neuromuscular conditions or is open to different treatments. The neurologist who diagnosed me wasn't a bad doctor, but didn't treat enough to know that not all MG cases could be treated the same. He wouldn't even try Prenisone until after I had a thymectomy, even though I could barely function. He had an order of treatments that he wouldn't deviate from...fortunately, the surgeon wouldn't even consider it until I was more stable. My current neurologist only treats neuromuscular and is much better at evaluating cases on an individual basis.

TexasRose--That sounds a bit like what happened to me. I was complaining to my rheumatologist for years about being extremely fatigued or not being able to situp and he'd tell me thats part of arthritis. Even though he normally had the world's best poker face, I could tell from his expression when he was reading the neurologist's report, that everything just clicked.