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Old 05-15-2012, 12:16 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Mike, Which channel antibodies were positive? Good grief!

Please refresh my memory, did you have a thymectomy? How high were the skeletal antibodies? If they are high, they may have to recheck your thymus for a tumor!

With so many antibodies, I'm really surprised that they didn't check blocking. They can still do that test.

So you might indeed have BOTH MG and CMS. You really should head to Mayo for more specialized testing! Can you do that? It's quite a difficult thing to do when you aren't doing so hot. The only reason is that there might be treatments your docs aren't considering, like 3,4 DAP.

I'll bet you really threw them for a loop. I'm sorry you are dealing with all of this.


Annie

Given that some studies implicate a virus in the genesis of MG, have your docs thought about checking some other basic testing?
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