I would like to share 2 samples of fatigable handwriting in the forum because it reflects to some degree what´s gone on but in a visual way. (If these bitmap attachments are too small to read I´ll resend!) ....I´ve heard it could also be writer´s cramp. Nevertheless the writing is 100% better than last year when I was at my worst and could not grasp a pen and apply pressure to sign my name. (Nor could I thread a needle, tie a shoelace, turn pages of a book, squeeze toothpaste etc.) ......In my opinion a lot of physical examinations of weakness are on the right track but stop a little bit short of fatigable weakness.
Most of the bulbar symptoms I did have ended up getting much worse when I changed to a new type of sedative and then in January the symptoms went into a nice clean remission 2 weeks after quitting all sedatives for good. Just lately though there are some distant myasthenic rumblings going on in the same terrains as before. I´m starting coughing in the evenings again and for a few hours saliva feels like its leaking the wrong way and now I take no medication whatsoever.
A very new symptom….my eyes have been going in and out of focus and blurring and one time double vision (vertical) of signs on the road whilst driving on a warm day and I´ve never had problems with distance vision. Exercise and heat especially give focusing problems which are resolved immediately with cold exposure. (I saw MS when I looked that up but have had a brain and spine MRI.)
2 blood tests for MG taken during remission in October were negative as was an RNS and thyoma scan. I am seeing my new doctor on the 24th and wonder if I should ask to be referred for any more tests or are these symptoms too mild? Where I live you kind of have to cue 6 months for neurologists´ appointments, and then one negative test means you have to take a break from cuing altogether
which is really fine if there´s nothing wrong.