Quote:
Originally Posted by Dejibo
wanna chop off my head, or pluck out my eyes! the headaches have been horrific since the last flair that left me blind. Since recovering some eye sight, my optic nerve is ultra sensitive and lights in stores, or headlights, or bright sun trigger massive cluster headaches. Not just migraines, the kind that make you want to smack your head on the floor to crack it open. UGH! is there ever an end to the merry-go-round of symptoms?!
I want ONE day where I dont have double vision, headaches, body aches, nausea or the like.
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Oh gosh Dej, this sounds so so much like what I went through prior to, and after, my attack of O.N. I am finally JUST coming out of that cycle, thanks I *think* due to switching medications.
Part of the reason I was away from here for so long was that I felt so crummy. I had to go back on short term disability due to 'migraine', but was it really? Migraine medications, oral, IV, didn't resolve it. I began taking Topiramate a week + ago now, and my headaches have vanished. I even had the absolute worst, most stressful, brutal in and out day yesterday, and woke today without a headache.
Maybe the medication is just coincidence, I'm tapering off Lyrica (down to one every second night now, soon to be every 3rd, then none) and increasing the Topiramate per neurologist's instructions, but I'm not going to change a darn thing now. What's working is working.
(Topiramate, by the way, is a trade off - headaches are gone, but I'm having side effects on this medication. The side effects for me are worth staying on the medication if it's keeping the headaches away, they were that bad/affecting quality of life that much for me).
I hope yours go away Dej, or you can find a way to get them under control.
