Hi folks,

I have body wide sensory PN (just had another NCS/EMG - waiting for results - was getting IVIG but now they are revisiting the whole thing) - that has taken away all feeling except unfortunately in my back and guts! Anyway, MRI shows I have disks pressing on nerves in my lumbar spine - the doc says I'm lucky the PN goes down my legs or the pain from the back would run down my legs - but the back pain is really disabling on its own, and wraps around hips and to front...

My doc sent me to a pain specialist (cant take any opiates - make me really sick) - we're tried PT but they have told me cant help me unless can reduce pain level first to try to do exercises they want ... the first pain specialist wouldnt do the injections at all (he said too risky cause afriad I'll move around because wont be able to stay in position long enough cause of pain) but the second one (who has a great rep) -wants to give it a shot (pun intended).....
she normally uses idoine which I know I cant have - but there is another drug they said they would use.... just wondered if anyone out there has had these iinjections - would be at L4-L5-S1.... in addition to reducing pain we're trying to separate it - I also have fibroids and endomitriosis and gastroparesis and they are curious what pain, if any - may be eliminated... Also, to my knoweldge I've never had steroids...

Anyone had any experience wtih this? Side effects of steroids? etc???

Appreciate any feedback