I agree with Annie, come on over to the MG board - There are lots of people there who've been fighting for a long time with their medical systems that will understand what you're going through. There's lots of support there if you have any questions or just need to rant to someone who understands.

http://neurotalk.psychcentral.com/forumdisplay.php?f=77

It is pretty obvious that you have some kind of neuromuscular disorder (and very likely MG) if Mestinon is helping you at all. Be very careful with the heat with summer on the way.

Brian.