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Old 05-19-2012, 01:45 PM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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15 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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SCS is not the only option. There are other treatments out there. Please look into tDCS...this is non-invasive (no risk of spread like surgery or injections), has little to no side effects, can be done at home, and is VERY affordable compared to many other treatments (only cost about $300 for the equipment). There is a thread on here about it that I highly recommend reading it all (well worth the time). Here's the link:

http://neurotalk.psychcentral.com/thread160980.html

There's also ketamine which has seen some good success in getting people into remission. It's more invasive and costly than tDCS but less invasive than SCS with a better long term success rate. Definitely do some research on it and maybe check out the Ketamine Klub on facebook if it's something that interests you.

SCS is not for me...too risky with a bad track record for patients with RSD. But others have them and are happy with them. Everyone is different and we all need to make our own choices about treatments. I only suggest researching ALL of your options and the risks/benefits of each and make the decision you are the most comfortable with. These decisions should not be made lightly or in desparation. You do have choices so definitely take the time to educate yourself about them.

Just remember that anything invasive (surgery, injections, etc) run the risk of causing spread of your RSD. That's not necessarily something you will read in the waiver you sign before surgery but it is a risk. I had spread from a fairly standard lumbar sympathetic block...so you just never know. Take care. And if you have any questions, please ask. I's sorry to hear that you have RSD...I wish no one had to suffer like this.
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