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Old 05-20-2012, 06:38 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Many people on here developed PN after cancer, and will be able to help you. There are supplements you can take to rebuild your immune system and help what can be healed. There are also medications, like gabapentin which dampens nerve responses, and opiates like oycodone and tramadol which can help with residual or stubborn pain. There are much stronger pain medicines as well if necessary. Most of us here seem to be at least on gabapentin or Lyrica, a newer version of it.

Your greatest immediate need would seem to be for a neurologist who is more knowledgeable and compassionate to get you started on some treatment if possible or at least medication for quality of life issues. It is unconscionable for them to let you suffer like this. Many neurologists do not like to treat pain and would rather pass you on to your family doctor, but they should at least suggest something and explain why they prefer someone else prescribe the pain meds. Often it is because it needs to be someone who sees you every month or so and not once a year. ( or never, as my neuro dismissed me since there is no treatment for my PN).

Most cancer related neuropathies seem susceptible of improvement, so hopefully you will get some encouragement from more knowledgeable people. I just wanted to express my sympathy for what you are going through. It sounds ghastly, but you should be able to get some relief with a better doctor or pain management specialist.
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Idiopathic PN (05-20-2012), Kitt (05-20-2012), mrsD (05-20-2012)