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Old 04-13-2007, 06:50 PM
janet janet is offline
Junior Member
 
Join Date: Apr 2007
Location: east tennessee
Posts: 29
15 yr Member
janet janet is offline
Junior Member
 
Join Date: Apr 2007
Location: east tennessee
Posts: 29
15 yr Member
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Hey KateLynn, When I realized I had a chronic painful condition with no known cure (trigeminal neuropathic pain) I considered my husband my caregiver. We talk about what he sees, how he thinks I'm doing, whether he thinks I can complete tasks. I tell him if I'm having a really bad day so he can buffer things for me. So - find somebody who can stand to see your pain (some of my family members are in denial) and ask them to help you. Another life lesson I had to learn: be gracious in receiving. I was really good at giving but I felt that I would be "pitiful" if I had to ask for help. One other thing: Journal your daily life. When you're up to it, review it and see if maybe something triggers your pain. It'll also help you understand that you CAN make it through a day of hell.

Hope this helps.
Janet from Tennessee
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