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Old 05-21-2012, 07:06 PM
MOOK MOOK is offline
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Join Date: May 2012
Posts: 4
10 yr Member
MOOK MOOK is offline
New Member
 
Join Date: May 2012
Posts: 4
10 yr Member
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Quote:
Originally Posted by CoralToe View Post
I too have not been "officially" diagnosed as having CRPS...however both the surgeon who performed my last two foot surgeries and my pain doc think it a likely possibility. That said...my pain doc does treat a large number of patients with full-blown CRPS...and I would stiil highly recommend her as she has really helped me control the pain monster. So many paindocs nowadays only do injections - or - only do meds...not only does she do both, but she also does ancupuncture and massage (both in-office or as a prescription to see a therapist of your choice), listens to your concerns about what meds do or do not work, and implants scs units (for patients with CRPS in their feet, like me, she has developed a way to insert the leads in a retrograde fashion so as to only target the foot, and not the rest of the leg along with it).

All that said - I will post her name here (mods, if that is not allowed, feel free to edit, etc): Dr Rajni Jutla. Her Seattle clinic is called "Mind Your Body Clinic" and I believe the Portland clinic is called "Mind Your Body Institute" Assuming Oregon's rules and regulations are like Washington's...you will need a referral before she will see you.
Thanks for all the information. We recently went to a Ortho Dr. at Legacy Emanuel Hospital. He confirmed there is no structural damage to her ankle/foot. We told him our Physical Therapist is the one that diagnosed her with CRPS. He said she doesn't show all the signs but it could be. He referred us to a Dr at The Children's Hospital at Legacy Emanuel in Portland, OR. It would be in the Pediatric Rehabilitation Services part of the hospital. The Dr.'s trained with the Rehab center in Philadelphia that specializes in intense rehab for people (I think mainly younger people) suffering with CRPS. We are scheduled to consult with them next week. I will keep everyone posted. She has been in PT 3x a week. She had back to back no pain days. However, she says her leg feels "tired". I'm not sure what that means. Hard for an 11 yr to explain. Wish us luck.
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"Thanks for this!" says:
catra121 (05-22-2012)