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Old 05-22-2012, 04:12 PM
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Join Date: May 2012
Location: WI
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10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default Fear during dx process

Hi friends,
I am an un-dx'd 36yo female going through the "figure it out" phase with a neurologist (see previous posts for my story). I've only been going through testing for a couple of months, have had an abnormal EMG and abnomal neuropsychological exam, and some findings in the neurological exam.

As I read online about "muscle weakness", specifically legs and arms, besides MG, and MS, one of the things that occasionally pops up is ALS. That makes me scared!

Am I jumping to the worst case scenario? Yes. Has my doctor mentioned that term to me? No. ALS scares me because of its prognosis.

How did others of you handle this time when you knew something was wrong, but you didn't yet know what it was?
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