Hi,I am new to this forum. I had surgery in September of 2011 for Chiari Malformation1. I am having a rough time getting doctors to understand my post op pain. I have days I hurt from the back of my head to the middle of my back. I have days where I can't feel my feet and hands. The headaches are terrible. Somedays I have what I call "jelly" spells. I can't coordinate my body. It is as if my brain is sending the signal as to what to do and it just isn't getting to my arms and legs. My husband has to help me to the bed. I can't go out in public for the fear of having one of these spells. Would just like to know if there is anyone else out there having the same or maybe similiar symptoms. I have been trying to contact my neurologist but to no avail. It is so hard to get them to call me back. Please help....I apprciate it and God bless everyone.