Hello everyone, my name is Tara. I have had really painful pressure in my head for years, but within the past year its cotton worse. Now the pressure occurs many times a day whenever I strain in any way ( coughing , sneezing, laughing ect.) The pressure is now accompanied by numbness and tingling in my fingers , legs, feet. There are a few more symptoms that have started within this year. I went to my doctor and after a lot of tests, and many appointments, I found out that I have Arnold- Chiari Malformation 1. At least I know what it is... but I am just wondering if anyone out here has it, or knows someone with it.? I have searched the internet and have found some answers but I'd rather hear from someone who knows firsthand. I'm 27 yrs old, and will see the surgeon soon. Anyone out there that feels like talking/sharing? Thanks, Tara