Quote:
Originally Posted by Hampster63
James I tell Deb that everyday, use it or lose it. Thank goodness she has to go to work everyday, it gets her out of bed and moving. If she was a home body her pain would have her on the couch all day. She just can't get past the god awful pain to push on. She's a trooper and a great friend and we push each other.
Question for you, do you know why some crps people have a balance problem and others don't? I've seen a lot of posts about having control over balance, why is our balance system effected? I was always told my short circuit of central nervous system caused my imbalance but when I see rsd people have the same thing I have to assume mine is also from rsd. Does anyone know why?????
We fixed Debs machine problem I believe, but we both still have not seen any improvement at this time. Will keep up the good work and pray for some kind of improvement soon. Thanks all.  |
I've only ever heard one theory on the balance issue and never seen anything to back it up (haven't looked though either besides a search online to see if the balance problems I was having were in fact related to the RSD). The theory says that because of how messed up the signals are that are coming from our brains (with the pain signals and all that) that there is a slight delay in the signals to "move" going to the RSD side, causing the imbalance. This makes some degree of sense to me because my RSD is in my left foot and I tend to fall to my right side...the rest of my body is moving forward with the motion of movement but my left foot is ever so slightly behind which causes me to fall. I have no idea if this theory is backed up by any sort of proof and would definitely be interested in hearing the "real" answer...but figured I would share this little theory anyway. I cannot for the life of me remember WHERE I read this btw...I read it back when I was in the midst of the worst period of time last year with spread and seratonin syndrome and all that. Many of my memories from that period of time are just GONE. But when people ask about the balance issues that's usually what I tell them and it seems to be something they can understand and wrap their heads around. Not that I want to be spreading false information...I really don't know whether this is the real reason for the balance problems or not...but it's an interesting idea...