Hi everyone, my name is Laura I am 36 yrs old and I have a strong feeling I might have MG. Here is my story....17 months ago I started getting a mild headache above my left eye and then I would wake up with that eye somewhat swollen....my PCP thought that this is an eye infection, however that was not the case because after awhile I realized I would wake up and the left eye looked smaller without being swollen. This would happen only when I woke up or if I fell asleep on the couch watching tv at night etc.....and then things would get back to normal through out the day. Also 2 times I lost my vision at work...where for 10 min or so I have very blurred vision. I am a nurse so I went to ER and they did a CT of the head which was normal. I was dizzy for awhile after that. Finally I got to see a neuro doctor in March who said the only thing he can think of is MG but if the blood test is negative then I dont have it...hmmmm well it was negative but I do know I can still have it even though the test was not positive. Since march now my symptoms changed again.....for 2 weeks or so at the beginning o this month my eye symptoms changed and were more persistent. I would wake up and it would be so difficult to open my left eye. It is like my muscle needs time to "warm up". The eyelid is droopy, the let eye more red as I got more tired, "watery" and when I would wake up I had many days when I felt it droopy all day. It is like I feel a constant pressure on top of my eyelid. Anyway I went back to my PCP and after he tried to convince me that all this is happening because I am anxious/stressed he order some blood tests and a CT. I did tell him that I feel exhausted all the time. He tried to blame it on my job, having kids etc. He tested me for Lupus, RHeumatoid Artritis, vit B12, VIT D etc everything is normal except sed rate is elevated. The only thing the CT chest says that made me wonder is : Findings: There is minimal sot tissue density in the anterior mediastinum typical of thymic tissue. There is no discrete mass to suggest a thymoma. There are punctate right paratracheal calcified lymph nodes. IMPRESSION: Residual thymic tissue without evidence of thymoma
The PCP's nurse called and said everything is normal....
what do you all think?
Thank you so much or all your help