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Old 05-26-2012, 06:34 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Most of us here seem to be on gabapentin. It primarily is a nerve dampener, it works for the burning and electrical zaps, not for the sharp pain or stiffness. I am one of the few here who do not have any side effects, weight gain, water retention, etc. I am on 1800 mg. daily. I do notice a difference if I forget to take it.

It doesn't help everyone, however, and some find the side effects intolerable. Lyrica is another possibility. Even with the anti-convulsives, many of us take pain killers for breakthrough pain. I take oxycodone to get though demanding days, long car rides, etc.

Has your neurologist thoroughly investigated the possibility that you have a hereditary neuropathy? I have CMT type 2 , and was about your age when the symptoms became painful. Has anyone in your family had trouble with their feet and legs, walking, worn braces, etc. it can set in at any age and varies greatly even within families.

My last question would be whether you are or have been on any triglyceride or cholesterol lowering medication. While I have some pain and usually use a hiking pole for balance, when I was on Tricor I could barely walk and was in intense pain with no balance at all. My neurologist suggested that I might want to go off that. I improved immediately, but it may have started a decline because my CMT has progressed quickly since then, which is unusual.

Is stiffness and difficulty going up steps or hills among your symptoms? I am losing the ability to go up stairs at all, it is vey painful. I also tend to catch my feet because I drag them slightly. If this sounds like you, investigate hereditary sensory motor neuropathy or CMT.

I hope that you get some relief
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ger715 (05-26-2012), Kitt (05-26-2012)