Even if those tests come back negative, keep on insisting on the other tests. Too many doctors will stop if one or two tests are negative - they don't understand HOW we feel, and we look "just fine" on the outside.

If everything comes back negative, INSIST that you be allowed to do a Mestinon "trial" - for many of us with no "positive" indicators, being able to tolerate Mestinon is an almost foolproof "diagnosis".

It's important to know if you have MG; otherwise, you may feel "guilty" for not doing more around the house, and you could put yourself in a crisis situation. It's vitally important that ER staff know if a patient does have MG; otherwise, "treatment" could end up going south fast (there are some medications that are absolute no-nos for people with MG)....