Laura, I'm sorry but sometimes we're sort of slow here because, well, we have MG. Welcome and keep asking questions.

Do you mind a suggestion? Can you make your paragraphs shorter? Since many of us do have issues with vision, it would really help to read your posts better. Thanks.

First of all, get copies of ALL of your test results if you haven't already. You'd be amazed at how many doctors don't tell patients everything.

Did he run a CPK?

When you say swollen eye, are you talking about your eyeball or the muscles around your eye?

Have you taken photographs of your eyes/eyelids and face? It might be hard to see any ptosis (toe-sis), aka drooping eyelids, if you don't take a photo. What happens in MG is that the muscles around the eyes weaken to variable degrees and that causes our eyes to focus differently, therefore causing double vision. It can look like blurry vision too.

With MG, you have binocular double vision, where it goes away when you close one eye. Have you tried that to see if it gets better?

You could go to a neuro-ophthalmologist, like Abby said, to see if they can fatigue your eyelids. You know, sometimes what you might think of as swollen might be that the tissue has drooped and looks relatively larger. In MG, it's just that everything shifts downward. Look to see if your eyebrows droop too.

Did they do contrast with the head CT? If so, it's normal to feel a bit dizzy afterwards.

Which of the MG antibody tests did he do? If he only ran the Acetycholine antibody tests, that's not enough. There is also the MuSK antibody test. And you can still be seronegative and have MG. Sometimes that's because there's an antibody they haven't discovered yet or because sometimes levels are low early on in MG. It's normal to recheck them in 3 - 6 months.

Like Abby said, he should've ordered a SFEMG. RNS too. MG is a CLINICAL diagnosis backed up with tests. A negative doesn't really do them any good. And some people only have a positive Tensilon test and positive response to Mestinon.

Have you written all of your symptoms down, when they happen, etc.? That's a very good idea.

Do you have any other signs of weakness other than the eye area?

A PCP is NOT a neurologist! You really should've been referred to an MG expert for evaluation. And he was wrong about the negative antibody = no MG.

I hope you can figure out what's going on. It might take awhile to figure it all out, so please be cautious. So, my advice is to write down symptoms, get your records, get referred to specialists as appropriate and try to relax. If you have MG, stress won't do you any good! Take care.

Annie