Originally Posted by AnnieB3

Jeff, I have had severe back pain from MG. I can now head it off, however.

It may not be that but it could be. When muscles get weak, especially the core muscles, it can thrown off the back. Also, muscles can cramp up when they weaken too. You can get into a vicious cycle of weakness, more pain, more weakness, etc.

I think what you might want to ask your neuro for is an assessment by a physical therapist. Now, don't go and pooh-pooh that! They can do absolute wonders for MGers. It helps if the PT knows about neuromuscular disorders.

Have you felt around at your muscles from your back to your hips? Are there any really sore areas? If so, your muscles may be so bad that they need PT.

Of course muscle relaxants would help with temporary relief of knotted up muscles and would most definitely make MG worse!

If your muscles are knotted up, they need massage, ultrasound heat and basic exercises to keep your core muscles in tune.

Muscle relaxants could send you into an MG crisis. You don't need that. Just get in to see your neuro and get his advice. I hope you can figure out something that helps. Kneading the muscle by yourself, if you find a sore spot, does help.

Annie