Quote:
Originally Posted by jkl626
I posted a link to a couple of dr's in your other thred.I also have neurogenic TOS and also have started to look into surgery. I have done alot of research, and have read numerous papers on TOS as well as gaining alot of info from this forum. I had a BPMRI which helped confirm my initial diagnosis,but all it showed was neural edema. I would wait until you find a surgeon before you have the MRI because each surgeon has particular tests that they like.
the The Vascular Dr's also operate on Neurogenic TOS. In L.A. All 3 Dr's that do this surgery are vascular surgeons. There are only a few neurologists in the country that do scalenectomy only and maybe nuerolysis) (Dr Brown in San Diego, Dr. Sanders/Annest in Denver) but if you need the ribs taken out you will probably need to go to a vascular surgeon anyway because there are blood vessels and veins involved.
There is a member that had a scalenectomy only but then had to go back for a second surgery when they found the rib impingement because the first dr. wasnt a vascular surgeon.
I'm sure there are some other people on this forum who have had cervical ribs taken out who will weigh in.
if you see Dr. Fantini in NY let me know, I have family in NY and would consider going there.I am still taking the PT route for now, I found a really good PT that is helping me now--- finally
Good Luck,
JKL
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I responded to you on the other thread as well about the vascular vs thoracic surgeons. Thanks for explaining that, I will probably give vascular surgeons a try too then. Especially since there are a lot more of them then thoracic in NYC. Dr. Fantini and 7 others are vascular surgeons, only one thoracic. I most likely will be seeing Dr. Fantini. I am not sure how much experience the other surgeons have with TOS although the website (they are all at NYU) indicates they are TOS specialists. But I guess you don't know how much they really know until you see them and find out their surgical history and success rates.
I also had a BP MRI that showed non-specific hyper intensity in all trunks and my suprascapular nerve. However, 3 doctors that I have seen have no idea what that even means. They just say its unclear. One doctor said it means inflammation. I guess that would make sense if my ribs and/or scalene muscles are compressing my BP.
Will keep you posted about my visits with surgeons here, I am going to start in NY and go from there.