Linda, I do understand the adapting thing, since I did it for years too. The problem is, however, that you've obviously gotten worse. And you aren't on any treatments. The one mistake you can make with MG is thinking you can control it.

I am concerned that you will go into a crisis soon. They are hard to predict and you can think you're okay when you're NOT. The only way I knew I was much worse right before my crisis were my oximeter readings. I have my own at home and they were not "leveling off" to a higher reading.

You can "teach" the hospital nearest to you at some point about how to manage MG. They can learn, they DID get medical degrees. If you do go into a crisis, you do want to have the closest hospital AND an ambulance take care of you. At the very least, the EMT's can give you oxygen. When you're in a crisis or close to one, oxygen feels like running through a cold sprinkler on a hot day.

Please don't fool yourself into thinking that - at least at this point in time - you can push yourself and you'll be "ok" after getting cooled off. MG doesn't work that way.



Annie