Member
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Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
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Member
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
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SpaceCadet,
Personally, I'd recommend getting in to see an epileptologist. A neurologist with extensive experience dealing with only seizure disorders. There are many different types of seizures ~ 30+! Sometimes, an EEG doesn't detect abnormal electrical activity (if it's deep within the skull). That does happen.
Which medications have you tried? Personally, I've had dependency problems with phenobarbital which my neurologist increased to a rather high dosage in hopes of controlling my seizures. Didn't work very well for me, but it was the most successful med for me. I was hospitalized while taken off the med ~ to prevent major withdrawals.
Different meds work well for different people....that's how I look at it. I'm sorry that you've had such a difficult time ~ being uninsured and assaulted. What a horrible addition to the misery of TBI. I'll have to look and see if there are epileptologists in your area.
Best wishes!
Shezbut
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