Sigh. Sounds like a severe case of Mestinon Confusion Syndrome. I have been having abortive attacks of MCS for two years myself. I'm sorry it's so unclear. I guess you could try 15mg for mild weakness and 30 for severe weakness.
When I take too much Mestinon, I twitch.
Reading your account, I see there was only one time when you got a really good response. The question is: do you ever get suddenly better after 30 minutes like that when you have an episode of weakness? If so, then given the other trials, I'd put that one good response down to coincidence. If not, then...well, then it's very confusing.
Abby
Quote:
Originally Posted by Geode
To review - I fluctuate between 3 states: almost normal, painful muscle spasms, and weakness. Doc thinks it's not MG, doesn't know what it IS. Gave me a trial of Mestinon just in case, but he didn't discuss with me how to use it. Rx written for 60mg every 4 hours.
First time I took it, I was feeling almost normal, took 60mg. 30min later, was weak, brain felt drugged, and pupils got tiny. OK that was wrong!
Second time, I waited until a severe weakness episode, and took 30mg. 30min later, eyes popped open and I could get out of bed and do housework. BINGO! I thought I'd found the magic bullet.
Next 4 times, I took 30mg when my eyes were droopy, but I didn't feel terrible overall. Went straight from ptosis to spastic eyelid closure, had some GI side effects.
Next time, 30mg during a bad weakness attack. Eyes opened a little for about an hour, but I was still down for the count. Repeat in 4 hours with no benefit.
Next day 60mg with bad weakness attack. No benefit, GI side effects.
Today 30mg with weakness; no effect.
Any recommendations?
tatia
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