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Old 05-29-2012, 11:20 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Tatia, The first time you took it, you OD'd because you took another 60 mg. 30 minutes after the first one! Is that correct?

Your doctor should've been more specific. What my MG expert told me is that starting out with a lower dose, like 15 mg., once or twice a day is a good idea. Then you can slowly build up the dose to see how your body responds.

More isn't always better with Mestinon. And DO NOT take it sooner than 4 hours in between doses! You could end up in an MG crisis, even if you don't have MG.

There will be plenty of time later to figure out if you have MG, get an expert's advice (a real doctor) and go from there.

How effective Mestinon is depends on a number of factors: How weak you are when you take it, how well your body metabolizes it, how accurate the dosing is, etc.

It is NOT a good idea to keep playing with the dose amount. My advice would be to start at that 15 mg. four times a day (no sooner than 4 hours apart) for a week. Then try 15 mg. 2x in the morning and 30 mg. later in the day for the other 2 doses. Again, I am NOT a doctor, so you need to attempt to speak to one about this.

I'm really sorry you don't have definitive answers. A Mestinon trial may or may not give you them. The one thing you definitely don't want is to take a drug that makes you worse! I hope you'll know soon if it works or not.

Annie
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Geode (06-01-2012)