Abby, Have you had your celiac antibodies done or a fasting glucose and A1C? They can also do a 24 hour potassium URINE test or other electrolytes. Has your endo checked other things like adrenal function (again, fasting)?

Maybe they could redo the LEMS test.

Imuran should've kicked in by now. At least that's what the experts say. It's supposed to kick in sooner than Cellcept. I know someone with MG who didn't know how well it was working until she went off of it. She went off anyway due to the side effects.

Don't forget about Hizentra.

While you're deciding what to do, think about your overall quality of life. I know MG sucks but you do have it. Can you really expect to feel like super woman unless you roll the dice and do reboot or stem cell therapy? Even that's not foolproof.

I don't have answers. I'm stuck with Mestinon only and a sort of half life.

Annie