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Old 05-30-2012, 08:01 AM
wbdolphin wbdolphin is offline
Junior Member
 
Join Date: May 2012
Location: Orlando
Posts: 58
10 yr Member
wbdolphin wbdolphin is offline
Junior Member
 
Join Date: May 2012
Location: Orlando
Posts: 58
10 yr Member
Default Thymectomy?

I had my CT scan the 2nd week in November at which time my thymus was "mildly hyperplastic", but apparently big enough to have it removed. At that time I was only 3 weeks post 1st ocular symptom. When it was removed transternally on December 20th, it was 4 1/2" by 4 1/2". I would assume that it didn't grow that much in a month, it's just that the scans are not always accurate. As for pain, yes it hurt, but the painkillers did their job to make it manageable. The worst part was not sleeping on my side for 10 weeks. One month after surgery my ocular symptoms went away, and I stopped the mestinon about 2 months later.

I was 50 at the time of surgery and I'm female. Oh and the CT scan showed no thymoma as did pathology report after the surgery.

Get a 2nd or 3rd opinion???

My surgeon wouldn't have done the robotic anyway, doesn't like it because he doesn't know how big and involved the thymus is until he gets in there.

I would say go for it if 2nd opinion Dr okays it.
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