Don't forget that remission doesn't necessarily mean full recovery - I was Dx'd 11 years ago, and I still have stuff left over from the relapse that earned me a speedy diagnosis.

I still have fatigue, incoordination, vision problems etc. But I am lots BETTER than I was when I first presented. So I have had some recovery - but not complete. I still have those days when my processing speed is very much impaired, I am still affected by the heat, but even though it all still happens it isn't new to me.

When I was about two-and-a-half years in, I wondered what the heck RRMS meant since I still felt like cr*p and I seemed to feel worse and worse every day. I was sure I must have been developing SPMS, but my MRI's didn't show new stuff. My neuro told me I was having pseudo-exacerbations (which made me feel like a huge whinger, and hypochondriac until I spent some time reading here and discovered it was 'normal' and not as bad as it sounds).

I think my body (and brain) was adjusting to my 'new normal' and that is a long, difficult and often painful process.

I hope that his is what is happening for you too. If your 'first' relapse was a really bad one, you may have done some long-term damage that will have residual effects.

Of course, if you are experiencing true relapses it is, I am sure, a different story - I am just talking about my own experiences, and we all have a 'different' disease. Sorry you are feeling so low. As some have said though, SPMS patients don't have the same access to medications etc - so don't be in too much of a hurry to prove your doc wrong.

xx