Okay Abby, I'm going to be a bit of a wet blanket on the thymectomy idea.

You have a bunch of symptoms that align well with MG. But you also have many that do not. Until you have investigated the ion channel stuff that was mentioned in another post, I would suggest the invasive surgery (without guarantees) can wait. It can always be done later.

Perhaps it is time for you to seek another opinion - from yes - another neuro. Perhaps someone who has experience with channel voltage irregularities. At least consider that your episodic weakness is the major limitation on your life - - and ask yourself if it is likely to be positively impacted by a thymectomey?

I don't mean to offend...but I can't help thinking that there is more to discover before any kind of surgery.

If I have offended you, please accept my apologies in advance.