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Old 05-30-2012, 04:34 PM
BackwardPawn BackwardPawn is offline
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Join Date: Apr 2011
Posts: 211
10 yr Member
BackwardPawn BackwardPawn is offline
Member
 
Join Date: Apr 2011
Posts: 211
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
Jeff, They might be able to code the sessions differently in order for you to have more! Ask them to show you how to do some of what they're doing yourself. They might be able to recommend a long handled massager that you can use at home to get the kinks out.

What drugs are you on? Are you on steroids? You can get a myopathy from steroids. Also, get your vitamin D and B12 checked. They are two of the most common vitamin deficiencies. Vitamin D def. can cause muscle pain too. So can electrolyte imbalances.

Good luck!

Annie
For the myasthenia I'm on prednisone, cellcept, and mestinon. But then I'm on a whole bunch of others that may be making the myasthenia worse. I'm taking painkillers for the back pain, neurontin and klonopin for the myoclonus.

I've also got a pinched nerve in my neck/shoulder area which is why I was prescribed the zanaflex. I was a little surprised that it helped the back pain, too, as I thought that was from weakness. I've been doing the home exercises, but I may end up going back for another round of therapy...I was just hoping to wait until after the thymectomy.
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