lynn,
sally is right on with her assessment.
i'm surprised you havn't been dx'd yet based on what you describe.

i have tremendous muscle pain and it's gotten worse with time. it never stops and is basically 24/7. it gets worse as the day wears on. the more active i am and the more i stay on my feet the worse it gets.

i totally get what you say. it drains a lot of energy and take focus away from what i'm trying to do or enjoy.

i was dx'd with fribromyalgia in the 80's and all my pain was blamed on it.
finally my neuro said it was MS related pain. he sent me to a rehab MD. along with PT he was willing to put me on a low dose of oxycodone. for my level of pain it doesn't knock me out or even make me tired. i know everyone is different tho. it's enuf to take the edge off and helps me to function more fully.

i've also been on tramadol but eventually it just didn't work for my level of pain.

consider trying to find a rehab pain dr. i actually found a rehab hosp in my area and walked in there one day and asked if they had a pain dr. i got the info and my neuro was willing to write a referral.

please don't give up. and imho, you don't have to have a dx for your pain. pain should be taken seriously by drs. your sx's warrant a tx. treating pain is a standard of care. please let us know how you are.