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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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I am so sorry to hear that you are going through this.
I personally think that if your current doctor's only two options are blocks and SCS then you need to look into possibly seeing a new one. Especially after getting worse after the second block. Mine spread after a block and that doctor was totally useless after that...too worried about protecting his own butt and all that. I didn't feel like it was his fault that it spread and I didn't blame him for that...but I do blame him for the way he treated me afterwards.
I think you need to try to calm yourself down and assess your options. Getting a second opinion from a doctor with experience with RSD should be at the top of that list. But when you go in to see them you should be prepared to go over the treatments you have gotten so far, what works, what doesn't, what you are interested in trying, etc and then get their feedback. I'm not saying you should tell the doctor what to do, but be prepared to have a conversation and ask questions about the different things you are interested in trying and why.
I don't blame you for not wanted to do the SCS...there are a lot of other options that you should look into first before doing something so drastic and risky in my opinion. Everyone has to evaluate and choose their own course of treatment...but never choose something out of desperation.
Sometimes it helps me when I write things out. I now keep a daily journal of my life with RSD. When I was at my worst I also made sure to write out all my symptoms and take notes on any research I had done. I would make a list of all the things I wanted to go over with the doctor and then make sure to bring the list in with me to the appointments. Just going through this process really helped me organize my thoughts and approach things better...not to mention it gave me a sense of control that I desperately needed. There's so much we cannot control with RSD so it's important to focus on the things you CAN do.
Educate yourself about your options. Ask a lot of questions not just of the doctor but of us here too. There are lots of different treatments out there, many of which you might do at the same time. The key is to find what works best for YOU. I'd start with the least invasive first and work my way up from there.
Take care...I hope you feel better soon.
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