Hello everyone - it's been a couple of months since I reported on the cytoxan I am currently taking so thought I would give an update.

Had my 4th infusion Monday. Doc has increased amount 25% each of the last 2 infusions so am about to about 1800 mg (still officialy a low dose, but getting up there). For the first time, I had side affects. Was nauseous all day yesterday and slept much of the day. Didn't actually vomit, but definitely didn't feel like eating. Today is much better and ate a pretty good lunch.

As far as how the treatment is helping me, no news is good new (or at least that's what I told the doc). I'm completely off Cellcept (had been taking 3,000 mg/day for 12 years), prednisone is down to 10/day and am still working on decreasing it slowly, and mestinon usage is down from 60 mg every 3 hours to 60 every 6 hours. Even with all these medication reductions, my mg is better. My daughter says I'm an much more animated in my expression (she can see that side, I can't!) and I am talking with my hands like I used to prior to mg. I never really thought about the talking with my hands business, but it is true, I do tend to talk with them a lot! The biggest thing is that when I was watching TV earlier today, I realized I wasn't having DV!! I only lasted for about 10 minutes, but that is the first time in about 2-1/2 years that the DV has disappeared! Gives me hope that the cytoxan might be working on that area also.

Will let you know more after my next treatment.