Quote:
Originally Posted by Breaker814
Alright so Ive done 2 lumbar blocks, the first one had helped a little but after a few days it came back, then when I did the second one I swear it made me worse. I think it even spread to the back of my thigh... So I went to the DR today and He Kinda FLuffed me. He told me we can do Spinal Cord stimulator and honestly Im still new to RSD and I really am Afraid to even consider that now. I know theres so many other treatments out there.
I'm just in a lost right now and don't know what to do or where to go from here!! Can someone please give some advice. I am in Long island. Im starting to think maybe I should travel into Manhattan but Im just Lost. Im starting to cry and be upset with this and ask myself why me and feeling sorry for myself. So any support on this would help me. Thank you so much people. you've been great. XOXOXOXO
|
Hello my fellow islander. i know the feeling your speak of . i had three blocks done and and each one seemed to make the beast worse. in response to this my PM offered these alternatives. (amputation, pain pump, and the scs. ) I first responded no I don not feel these are the right decisions for me . so he replied then its just pain killers. not much else I have.so scared and ****** I researched more. first let me explain my decision to decline options he gave. well amputation. the limb(at the time only one) hurt like all hell but it still holds weight. it is mine and I wish to keep it, there has to be other options. ... the pain pump. well surgery and drugs and repeat. the risk of RSD spreading with surgery is significant and I don't wish to be drug dependent, (there has to be better options. and the SCS well it has helped some for a little while and even less for longer than that, the risks are great in my eyes. (of course surgery, possible RSD spread, but then there is leads moving, batteries failing, nerves being burnt , and I'm sure there was more but that wasn't for me, all are scary to me. despite how much pain I'm in. I use I be cause we are all different these were what my reasons were, and I have always had a high threshold for pain. so I see ll of the above as last case scenarios. and I do not believe my dr tried all options. so I researched and I am still seeing options that are new. i.e.. ketamine infusions, hyperbaric therapy, aqua therapy, calmare, and though I hate pills and drugs, he hasn't really played with my drugs all that much, so as I researched I took notes and presented to all my dr,s and my neurologist keeps pushing for his ideas for treatments such as in patient pain psychotherapy and PT. and my PM agreed to try aqua therapy with starts tomorrow, in with I am paying for until i can get ins to pay. all to a point. As they said before me do not decide in desperation , calm down best you can research and you decide what is best for you. after all it is your body and you are the pilot, don't let them drive they do not feel the pain, you do. You know your body better than any one else make a journal go over it with you dr,s along with your research, and make informed decisions. ones you can live with.. many soft hugs go to you , I know you're scared but you aren't as alone as you sometimes feel, you have us!!!