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Old 05-31-2012, 09:04 AM
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
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Unfortunately, I am very sensitive to noise and vibration. I had to wait outside the other day while at my doc's office because they were running the copying machine AND even worse, a fellow patient was playing some very loud, very jarring game, on her cell phone. Outside, the wind did not make my arm any happier, so I sat in my car that was luckily right in front of the office. There was a time, when I was level 8-10 pain all day, every day, that that would have sent me into a massive flare. Tears would likely have been involved.
The environment had started elevating me from a level 3, to the 5-6 range. Anywhere in public, including almost all offices, just have a level of noise and vibration that is intolerable for me to be in.

MANY of those with RSD are so severely disabled that work is not an option.
If driving one day for five minutes sets you off, what happens the next day? Are you having to recover from the day before? Those who are healthy have made the claim to me on occassion that they would work regardless of their health. That's because we'd all LIKE to believe we have that control over our health.

And there ARE RSD patients who do learn to adapt and work. BUT, getting you safely and comfortably to work is step one. You MUST discuss this with your doc. It exacerbates my pain to drive, but also to be driven. If you're the same, it might be unrealistic to return to work. It took me YEARS to accept that I wasn't going to go into remission and return to work, or even figure out some way to adapt to a new career. I delayed my SSDI approval because I wanted to work so much, that I just wasn't honest with myself.

Maybe, you need to try getting up and leaving the house for 8 hours a few days in a row to see how your body responds. Go to the library or a Starbucks and just sit and read. Note what the drive does each day, if your fare worse on day 2, and then day 3, etc. Or go try and sit through a few movies at the theatre, or walk through the park, but it needs to include getting up at your regular work hour and a commute...

Good luck!
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"Thanks for this!" says:
ginnie (06-01-2012)