I went to the neuro doc today and told him about the hand tremors, extreme weakness and and the twitching in my face. He made note of all that and did another physical exam and checked reflexes. I especially failed the part where he told me to put my chin on my chest, then resist by trying to raise my head while he held it down. I could not raise my head. He made me do it again and I still couldn't. Don't know what that means, but anyway he told me that even though my antibody tests were negative, I most likely have MG. But I found out that apparently, I did not have the single fiber nerve test, even though I thought that painful sticking of the needles into various parts of my body, and then told to flex those parts was it.
He is sending me to MCG (Medical College of Georgia) to have a single fiber nerve test then I will come back to see him a week after that. Although he is fairly certain I have MG, he wants to narrow it down and make sure that I do not have another disease.
He told me he hoped it was MG because for the other things that I may have, there is no treatment, and with MG there are treatment options and he feels he can help me. I agreed.
He still was not going to give me medicine until I asked him for it. I told him that I had been seriously scared by my symptoms and was alone during the worst of it and could not have driven myself to get help so I needed something help with the symptoms while I wait for the diagnosis. He agreed to give me mestinon but told me that I will have to stop it at least 4 days before the test.
I have taken two 60mg tablets today, and it may be wishful thinking, but I do feel somewhat stronger. Whatever works, weather real or imagined is alright with me. I have had no side effects other than about a five minute period of excess salivation.
Thanks for listening.
Linda