Quote:
Originally Posted by AnnieB3
Abby, I'm really trying to understand where you're coming from in your recent posts. But I'm getting mixed messages.
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Oi oi oi, I've been all over the place. What's going on is that I'm considering having a thymectomy (and my neuro said, if we're going to do this we should do it soon). Before I do something so invasive and perhaps dangerous, I want to set some other possibilities to rest. It's one thing to be "mostly sure" I have MG if I'm treating it conservatively; but surgery requires a higher level of confidence.
Quote:
Originally Posted by AnnieB3
Okay, so on this thread you say it must be MG causing the periodic weakness but then on the other one you say it could be HKPP. Or a channelopathy, which I had brought up ions ago (sorry couldn't resist the pun).
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My symptoms are changing. Something new is coming into focus, which is this thing about episodes. They didn't stand out before, but they do now. So the channelopathy idea (HKPP is a channelopathy, right?) fits better now than it did before. I used to stumble around all day, and sometimes get rather worse. Now I walk completely normally--you wouldn't be able to tell anything was wrong--except when I can't walk at all. I can go from one state to another in the space of ten minutes.
Thanks, as always, for your helpfulness.
Abby