Shari, Well that's good and bad news. However, I've always found that one or two phone calls can change even a Medicare policy! They have policies in place so that they don't have to spend money. It's not really about you but their bottom line. So if your doctor lets them know, along with you letting them know, that you can't get out of the house that often due to how much worse you get, then I'll bet you could find a way to still have that nice nurse come help you!

MG makes everything difficult, including even a change in location of treatment. So don't feel bad about being so sad that you might lose it! I would be thrilled to have someone come to my home to make my MG better. Losing that would feel awful. You're right, she's not just a nurse. Most nurses are amazing that way.

So make a few more phone calls and see what you can do. Congrats on getting this worked out!


Annie