hello .my 1st time here and thank you in advance for any replys .
I was diagnosed 3 years ago with B12 deficiency levels 164. I started on injections every 3 months . Then I was told I had low Vid D so started on 2 tablets every day,
I still had symptoms although they didnt go a way I could cope. however for about the last 6 months my symptoms have only gotten worse. I think I have every symptom connected to B12 apart from weight loss. im actually over weight.
I have had a bit of a battle with my doctor trying to get more injections. On my insistance the doctor did another B12 test along with some others .
B12 = 392 norm being 197-1126
vit D 41.1 nmo1/l norm being 48-145
Serum folate 5.8 ng/ml norm being 2.2-10.6
TSH level low= 0.04 norm being 0.4-4.0
serum creatine kinase level =39 u/l norm 25-200
I still thought my B12 levels were very low considering I had been having injections for 3 years and vid D still low after taking tablets for same length of time . and now my thyroid levels are low and to be re-tested (18th June)
My doctor spoke to a haemotologist and asked if I could have more injections. He wasnt convinced they would help ( So what will ) I just feel like crying im in so much pain.
The doctor has decided to give me an injection every week for 5 weeks and then re-test my B12 levels again a month later and then decide if im to continue every 3 months or 2 months. I think its about time I saw a neurologist and determine exactly how much damage I have as I have got another symptom I have searched on the internet and it seems I have whats called thumb in palm deformity. this is normally associated with celebral palsy which I dont have but can be coursed due to damage to the spinal colume. Im wondering could this new thing be due to the B12 deficiency.I think some times Im going crazy and its all in my mind.

( Help.