Hi Kitt-

Finally got back with the neuro at my HMO. The primary care Doc refussed to answer my questions about the nerve testing -said she was not knowledable enough to answer (then why the heck did she just not send me to neuro to begin with!). The neuro reviewed my nerve testing last week with me and said it was quite confusing. I had BOTH types of damage-probably going to laugh-but I cant remember exactly what that meant now that the appt was several days ago. Something like slow AND no reaction (?). The neuro did agree for the genetic testing which I am grateful for. I want to know if CMT is what's causing the numbness and pain. He did say that the lips going numb is really not a classic sign of CMT. And that is one symptom I really hate. Bothers me all day. I am going back to the HMO to get a actually copy of the nerve test-maybe someone on here can explain it all better!

Thanks for all the good info