Ok trying to word this correctly is alluding me. What problemsPaula may or may not have no longer matters. She is obviously not going to be good for us(for her ??? maybe) we really can use some one like Michael J Fox and so on but unless another big start steps forward saying they have RSD we are up a creek. we can try writing a few celebs to stand up for us and help us with our fight and our cause, but I think as a group we should write our president all different letters maybe post something at our PM dr,s office to sign a petition or write a plea themselves. We need to step up together. not saying we don't do on our own. but together at one time??? we need to make the govt see it we need to make it real to them , send them our stories make there desk look like one big letter. and we should speak with our churches, get those pamphlets from RSDA and put them in our dr,s offices. call into radio stations, get the noted dr,s to get there studies out in the "real" world not just the world of other dr,s.(research seems to go to the groups that make the most noise(squeaky wheel and all)Maybe we should send letters out to paula (not angry) asking her to join our talk groups and find out ihow bad her RSD is maybe something good could come of it. I don't know the real answers for us but I believe this could shake some ground and maybe we can find our champion that way.. we need to be saved thats for sure. but for that we must be heard. I don't know how to start this but as a collective we must have some one that can help organize (US). I too am tired of being treated as if the issue is in my head or (you should try harder its mind over matter) i don't need a cheer leader I need a voice, research A pain friken. free day would be nice. I HATE people seeing the drugs I take and making judgements about me. I hate being looked at when I park in a handicap spot or when i see an IME and he says maybe if you lose weight. hello Im fat because I am not physically active. .. answers have got to be given but for that we need a voice to ask the right questions. we need research and better treatment options. but who aside from the RSD community really know this. Right !!! less then little. even dr,s are lost.(not right) if i had cancer(no cure for that either) I would be taken seriously. fibromyalgia is all over the news and commercials. hello RSD????are we the red headed step child you hide??? ..sorry about the rant. !!! but maybe this can all work