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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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Feeling frustrated and unheard
I need to vent please. Im so tired of this disease!! Im weak on the right side and have that foot drop but not bad enough to get that boot thing for it. Im taking my shots faithfully... ouch!!
My legs are numb from below the knee to my ankles, and my toes will go numb at will. I keep tripping and falling because I cant tell where my feet are stepping. My eyes are still making me see little flashes of light, but it has gotten better. I use to be great at the typing, but now I hunt and peck... so embarrassing!! I have noticed a few times that when I go to read something, my eyes start shaking, like going side to side.
My limbs jump ALL day!! My right foot jumped so hard the other day, I actually screamed because it hurt. This insomnia is going to make me crazy!! I have not slept more than 3 or 4 hours a night for the past 2 weeks. Im so worn out but cannot sleep. Im like a zombie going thru my day. Thank God I dont work anymore. I have given up things I enjoy in life because of this disease!! Work, driving, walking thru a grocery store..... It has taken so much from me and just keeps on taking.
I can just feel 'ME' slipping away and making room for this new chick! Im usually pretty positive about all this stuff, but lately Im feeling beat down. I try to tell my dh about this stuff, but all he'll say is 'Im sorry' and then he carries on with whatever. Its like he doesnt hear me at all.
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