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Old 06-04-2012, 09:36 PM
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
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Kitty Lady, my MS symptoms are not a lot different than when I was dx'd. Of course they had to be pretty bad, and show on tests, before I was dx'd after 34 years of symptoms undx'd and untreated (I think I was 51, I forget). I had years with no eye trouble after 8 years of eye trouble, the eye trouble precipitated the dx. Now I'm back to severe eye trouble, which I believe is brought on by the smoke we are having now, and had last summer, from big wildfires in New Mexico. My eyes do that side to side routine you describe (it's called nystagmus) and if I sit too long at the computer, the eyes go up and down and clear up into my head, at least from how they feel, a definite sign to stop computing. I am trying not to use the computer much, and listen to news on the puter rather than watch it, as much as possible. So I have lost one of the main things I got in my old age--computer use. Not lost completely but severely curtailed.
You could say my eye trouble from smoke is more Porphyria than MS, but the results are pretty much similar, how to know? Docs don't know. After so many years of recovery in that area (although other illness popped up too, Polycythemia Vera for one).

I do not feel I am losing me because I've been locked into a ferocious struggle since I was 17. I had never thought of it that way until I read your post, and compared it to me.
I have many of your other symptoms too....the jerks are now keeping me awake ALL night, and then I sleep until ten, and even magnesium, my standby for many years, prescribed by a neuro, is failing me at night. The jerks are painful and make me call out to God for help.
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"Thanks for this!" says:
ANNagain (06-06-2012), ginnie (06-05-2012), KittyLady (06-05-2012), SallyC (06-04-2012)