UGH, sorry. That really stinks!

As for the MDA helping you....don't waste your time. They provide zero drug assistance. They are more helpful for adapting homes, providing equipment.

My family of 3 pays nearly $1300 a month for health insurance. With that I still have $7500 out of pocket annually for IVIG alone. My child has health issues, so our monthly scripts are several hundred a month. It's tough....but at least we can get a little back at tax time each year.

Things will only get worse with the new healthcare changes coming our way. We the paying people will pay more and get less for it. It's very sad, and I worry greatly for my daughter's future.