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Old 06-07-2012, 09:12 AM
kimmyF kimmyF is offline
Junior Member
 
Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
kimmyF kimmyF is offline
Junior Member
 
Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
Default 4 weeks post Thymectomy

I'm almost all healed up, a little itchy but barley any pain at all anymore! Just when I mop my floors

I saw my internalist yesterday and we decided to keep me on 60mg of Mestinon and IVIG every 28 days, my double vision is back andi have been very weak in my legs and arms since I should have had my IVIG at least a week ago and it always gives me that boost I need.

I got a copy of the letter my neurologist sent to my internalist and he said "that is in a month if I was feeling better I could try and wean myself of my Mestinon, but if I was doing good we would have to start treatment again"

I'm a month post op and wouldn't dream of talking my self of my med's, don't get me wrong I would do the surgery all over again, but I think we should give it more time to see if it has helped at all.

I also see my surgon on June 12 and he will do some tests to make sure he even got all the thymus gland out, then in the middle of August they want to re-check my antibody levels and see where they are at.

I am being treated by the best medical doctor we have in my town, in her 40 year career I am only her third case of MG she has ever encountered, so it's a bit of tril by error, is there any way to know by the antibodies if the Thymectomy has worked? Or any other tests we can do? Or is it just a wait and see?

I have been having a New symptom of memory problem, anyone else have this or is it just that I have sooooo much going on???

I guess with my symptoyms back so bad it could be the weather, this is my first summer with MG

Hope everyone is doing good
Thanks for listening
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