Restorative, I have to suggest that you look into Porphyria testing. Many of the same symptoms are common among people with Porphyria. Doctors may tell you it's too rare to be found in you; but after I was dx'd, my pcp found two others with Porph in his practice.
I will never know for sure the relationship between Porph and MS, but I think Porph causes some MS, thus my MS diagnosis nearly 30 years ago. I believe now that I essentially "have" MS due to Porphyria attacks on brain. This is a VERY complex subject, and diagnosis is often done poorly due to doctors and even labs not knowing techniques.
If interested call Rochester Mayo Clinic Porphyrin laboratories for protocol for testing.

I lived in the limbo you are in for all of my youth. Exactly like you. And your ability to meditate and find calm in the midst of this chaos will help you. Be blessed.