Went to see the surgeon today about having to have my gallbladder removed. I prefaced the whole meeting with telling him about having RSD and my concerns about surgery and spreading etc.
He was completely honest in his lack of knowledge about RSD and in fact had never heard of it.
Needless to say, he does not feel comfortable handling my case. I see my primary doc tomorrow and he and I are going to put our heads together to find an RSD specialist instead of just seeing my pain management doctor for treatment.
Yesterday when I went to the pm doctor and asked her about surgery precautions with RSD she literally shrugged and said, "honestly, you are more well versed in this condition than we are. We only treat pain."
So while I appreciate everyones honesty in their lack of knowledge..it kind of makes me feel like I am out in left field for treatment.
My goal is to find someone who can be on board for when things like surgery or ER visits come up and will have standing orders in place that other doctors can use as a guide.
At this point I don't care about travelling...I just need to find someone who knows what they are doing instead of a pm doc who is just throwing meds at me and trying to talk me into a scs.
What a frustration..but I am holding on to hope that I will find the right doctor for me.