I have the ON on the left side of my head and have just started on Topiramate. I've tried Amitriptyline - didn't help; but was given Apap/Tramadyl for the pain. Then they tried Lyrica - that was BAD! had to stop when I started the 2nd pill. Then was put on Gapapentin. I was told to still use that but to decrease it as I increase the Topiramate. But thank God I have alot of leave as all I want to do is sleep and it all makes me feel crappy.

Back in March they injected a steroid concoction which didn't do much but maybe helped alittle. I went back in May and they tried an injection in the top of my head where I was having severe pain - by the end of the night I thought I was going to have to go to the ER the pain was so much worse - I just kept taking pain pills, took about 3 days to ease up!

I'm keeping my fingers crossed that the Topiramate will work!